Cancer and baseball and a passing comment… the connection

Woke this morning with events of yesterday replaying in my mind and shouting to be put down in writing.

Yesterday was an interesting day. Most of it spent at the ball park, freezing I might add, with an incredible group of parents and friends watching our boys play baseball in a tournament. It was a hard day for the boys. And probably an even harder day for the coaches, I imagine. Frustration is a word that comes to mind. We lost both games, the second one badly, as the boys struggled to keep their focus with each scoring run by the other team.

Later in the evening, Alexander and I visited friends at an annual holiday party. Visiting, laughing and playing the drums (yes, I did, along with others) –my son was mortified, but dang it felt good – was what we both needed, especially after the past week.

You know how you can be engaged in something and someone makes a passing comment, shares a thought, and you realize you just heard the missing thread that draws seemingly unrelated feelings together? I love it when this happens! I feel like I’ve been let in on a secret and now I have to share.

It’s Christmas week, our daughter just came home from her first quarter at college, our sons were wrapping up their school week before vacation, and I had my college exams to give until just a day ago. And then my husband, midweek develops sudden high fevers and he is admitted to the hospital during our youngest son’s school holiday show.

There the three of us were. My daughter and our youngest son on stage uncomfortably, but adorably singing, “We wish you a Merry Christmas!” And their Dad, yet again, at the hospital. A fair estimate I have is this was probably somewhere around his 30th hospital admission in the past four years. As I sat listening to Christmas carols being sung, I wondered how many other families would have continued on the path of the evening or would they have chosen to abandon a holiday tradition to be present at the hospital with their spouse, their father, their loved one. He was in good hands. Not much we could do during the admission. We visited after the show. It’s the high wire act we live, keeping life as normal as possible for the children, and managing an ailing chronic condition. I cannot accept that I may never be able to articulate the disconnect I feel at times when my life is this chaotic. It makes many moments seem almost surreal.

Now, for the thread. A friend at the party, one I haven’t seen in a while, said she’d heard my husband was in the hospital and commented, “You must be used to it by now. Probably no biggie.” She meant kind words. However, they stuck and they stung. I wanted to shout, “Nobody gets used to it. As a matter of fact, with each admission the kids and I relive a flood of emotions of all the previous admissions like a bad dream.” But, I spared her.

The truth is, as hard as it is for the patient to be admitted, it’s pretty darn trying for the family. I write this for the other’s going through something similar. I use the example I was given a while ago. When someone narrowly escapes a fire in a burning building, their mind remembers the experience and emotions elicited in order to use the information in the future. It is part of our survival instinct. The next time that individual smells smoke in a building, they are going to respond very differently than the person who never experienced being in a burning building. In a matter of seconds, feelings of needing to escape are going to flood the experienced individual because their mind had the previous experience to draw on.

When a loved one is admitted to the hospital, it is probably one of the most stressful events a family can experience. If they are lucky enough, the admission goes well and it’s a very long time before it ever happens again. In our case, as with many families dealing with cancer, hospital admissions are common but no less traumatic with each admission. I argue they actually build on intensity because of the previous experiences. In our case, we have been told my husband wasn’t going to make it on two separate hospital admissions. We have shown up to his room to find him having been suddenly moved to the ICU. We have visited him in isolation where we have had to dress in gowns, cover our faces, and wear gloves to just touch him, for 88 continuous days. Those experience carry incredible weight with my children when they hear, “Dad has to go to the hospital.” What I’ve noticed is how most respond to us as if we should be used to it. And we just aren’t.

What I have learned from my children and their sports endeavors, is when there is a loss sometimes it’s best to just let it be. Take some time to process the feelings. Kind words from another can help, but they won’t necessarily ease the pain. But they do help. Getting back to practicing and moving on to the next game is sometimes the best thing you can do. Trying not to let the past experiences influence your perceptions of the current, but approaching as much as possible the new game with a clean slate. A fresh start.

The second half of the tournament is today! Good luck boys!

My husband came home Friday evening after only two days in the hospital. They could not find the source for his fevers. More tests will be run before and after Christmas.

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16 thoughts on “Cancer and baseball and a passing comment… the connection

  1. Jeannie, I continue to be amazed by your strength, love, family values, and incredible ability to express through words important lessons for us all. Sending hugs and best wished to you and your family.

  2. Jeannie I admire your ability to express your thoughts so well. What a great help you must be to those who so need to hear these beautiful words. Ive not gone through your long journey of strength and pain, but I think I understand some…that horrible word “cancer” just sucks. Im sitting here on what should be a glorious day, days before Christmas and I too have so much to be thankful for…Jordan is home from UCSB and my son home also…but thoughts of 3 years ago at this time, my dad was battling 4th stage lung cancer…so I’m a tad depressed 😦 …but I will bounce out of it soon. 🙂 What i remember of all the hospital visits was feeling almost like another being…you just do what you must do and somehow it works. I was like the energizer bunny, I have no idea how I functioned some days, I just did. I believe unless you have been through these kind of experiences for those that try to say the right thing, they just can’t…but your words can somehow hopefully prepare those that may have to some day… and give them your strength…. thank you for sharing!

  3. Jeannie, I appreciate you sharing and using analogies that make it a little easier for those of us that are not in your shoes to understand. Love and prayers to you!

  4. Thank you for writing. I am in similar shoes to yours and I am grateful to a friend for introducing me to your blog. I haven’t met anyone dealing with what I am going through, and your blog takes some of that sting away from living a life other than typical. Merry Christmas to you and your family.

    • Thank you for commenting. I hope you and your family are able to find some peace amongst the craziness. The holidays, especially, we have found can be very difficult with the umbrella of uncertainty ever present, but we have also found many silver linings including being able to enjoy simplicity. We had to learn that along the way. I wish for you the love of family and friends and many, many hugs.

  5. Oh Jeannie… thanks for sharing. Your wise words are a gift to all of us. I love you and I’m thankful for sports and UCSB and holiday shows and anything somewhat normal in your family’s world. I’ll continue praying for each of you. Peace to you this Christmas my friend.

  6. Hi Jeannie- I can’t find your contact info on the page and would really like to ask you some questions about your tales, cancer, and giving care. Please email me when you can. Thanks!

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